Recognition and valorisation of care work family member-caregiver assisting a family member aged between 0 and 25 years suffering from a rare disease (EN)

Problem:

Lack of resources to support caregivers

Solution:

This regional council resolution addresses a very delicate and complex issue for numerous families facing a care situation a family member aged between 0 and 25 years suffering from an illness rare and requiring ventilation and/or artificial nutrition. In the art. 1 of the text approves the criteria for the assignment of contributions, for the year 2022, to families.

Target:

Caregivers of people suffering from rare diseases under 25 years of age

Description of the policy / project